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Nontuberculous Mycobacteria (NTM) Portals data is structured as a natural history study, and not an epidemiological study. There is no strict data collection protocol that is uniformly enforced. The notional protocol is to collect information for pulmonary NTM cases of interest at the time of first diagnosis. From that point in time, both retrospective (past) and prospective (future) data collection will commence. Imaging may be conducted during the course of treatment at varying intervals based on site specific protocols. Genomic samples may be collected at specific sites and vary in terms of the intervals collected. The data are curated and validated as accurate by physicians at the time of data entry.
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